4P Inc: Perpetual Preemie Parent Paranoia: 1-Year Anniversary

Monday, March 7, 2011

1-Year Anniversary

A year ago today, on a rather cold and rainy afternoon, we brought our little peanut home after a very long and agonizing 3-month stay in the NICU at Sharp Mary Birch. Thank you to all the doctors, nurses and specialist that made that day possible. And a huge thank you to my husband Mike and my wonderful family for all the support you gave me, I don't think I would have made it out of there with my sanity intact without you. And most importantly, I would like to give all glory to God. Without his grace Noah and I wouldn't be here today to share our miraculous story with whoever is willing to hear it. I made a promise to him upon waking up from my coma to share my love and gratitude for Him every chance I got and I am thankful that this blog is helping me do that today. Amen!

1 comment:

JessiMarch 8, 2011 at 1:04 PM
Yay! Look how far you've come!
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Meet Our Miracle

Noah Matthew was born on a rainy Winter day, Pearl Harbor Day to be exact, in 2009. We like to think it was Noah's way of warning us, a day that would live in "infamy", LOL! My pregnancy and Noah's birth was not like many other of his preemie friends. I had contracted H1N1 (Swine Flu) at 24 weeks and had to be put into an induced coma my first night after the ER because I was essentially already dying. Over the next 5 weeks I was on a ventilator, got a DVT (massive blood clot) from a line in groin, went into renal failure and eventually had to get a trach. As I began to wake up from being weaned from the paralytics, Noah started experiencing heart decelerations and the decision was made to deliver him via emergency c-section at 30 weeks. Noah spent 90 total days in the NICU mostly dealing with severe GERD, slow weight gain, ROP, anemia (2 transfusions), hernia repair surgery, and weaning off of oxygen. It was, for the most part, an uneventful stay but the post-traumatic stress I experienced in dealing with my own mortality and subsequent paralysis in my right leg/foot, made things that much more stressful. No longer was I the strong, independent and fully capable person I had been before. The first few days and weeks I held Noah, I was in a wheel chair or seated with a walker in front of me. How would I ever take care of this fragile human being who depended on me for his life, when I couldn't even take care of myself? Noah is doing wonderfully and is only slightly delayed in gross motor and is about to start the process for Speech Therapy. Other than his many gastrointestinal issues (reflux, horrible gag reflex, vomiting, constipation, inability to transition to purees/solids, and slow weight gain) he is doing remarkable.

If there is any doubt that God exists and is merciful, all you have to do is look at Noah and bear witness to his miracle work. With only 10% survival for the both of us in that first couple of weeks, we defied the odds, and it was only by the grace of God, many prayers, the wonderful care of doctors/specialists/nurses, and our determination to live. My hope is that this blog is a testament to how very grateful I am that I am able to kiss my husband at night and tuck my son in for bed. Amen!