Oi vay, it's been to long since my last update. Nothing much has happened since then. We got Noah a chair to sit at the table with us and watch us eat. So far so good. He likes to make a mess but is having success with Cheerios, Graham Crackers, cheese puffs and freeze-dried mangos. He still likes rice and guacamole from Chipotle and fried rice from anywhere. He also likes the Stuffed Baker from Claim Jumpers as well. That being said, he still will only take a couple bites max and then his is over it. Nothing we can write home about and clearly not anything that would constitute a 'meal'. We had an appointment with ENT today because he is still very congested despite our efforts to treat what we thought were allergies with sinus rinses, saline, suctioning Nasonex and Claritin all to no avail. He had a soft-tissue X-Ray done on his face this afternoon to look at his adenoids and see if they are enlarged. Dr. Bothwell will call us tomorrow with the results. For the first time ever I am hoping for a positive result because if that is what is causing all this congestion it may possibly be resulting in trouble eating and loss sense of taste among other things. If he does have enlarged adenoids, the procedure to remove them is very easy and can be done at the same time he does his endoscopy next week. I read this article and was surprised to see how common it is and how unnecessary the tonsils and adenoids really are. Oh good Lord, please help us find some answers because we still haven't gotten any to this day. I found this cool tool to put in the blog:
By infantchart.com
Please say your prayers for Noah tonight. Good night and God Bless!
Monday, January 31, 2011
Sunday, January 23, 2011
In other news: pounds and ounces!
... Mister Noah Matthew Pacheco has crossed the 19lb threshold as of tonight! So proud of our 'little' guy. If we use his previous height measurement at the doctor's office in mid-December with today's weight, on the growth scale he is @ almost at the 10th percentile adjusted for weight, @ the 75th percentile for length, and @ at the 50th percentile for head circumference!! So looking at the big picture, he's a tall skinnyish kid who holds our hearts in his little hands. <3
Tick Tock...
Noah's endoscopy is right around the corner (2/7) and I can't help but feel anxious. On the one hand, I really hope that we can find some resolution as to why Noah is having such a hard time with feeding and transitioning to solids but on the other hand I really don't want him to be intubated again. It's a requirement for this surgery just like it was when he had his hernia repairs done. And while he didn't have a problem getting extubated last time I always worry about situations involving his oxygenation because he was on O2 for so long in the NICU. Please say your prayers for our little mister.
Tuesday, January 18, 2011
Mike says he'll be walking by June...
And I say that is a very lofty goal considering it took him until he was 12.5 months actual/ 10 months adjusted to crawl. But we shook on this little bet and we'll see who's the winner of the chicken dinner in a few months time. As a result, Mike has this poor kid walking all over the place! He holds his hands and walks around with him and now has him pushing his activity walker/trainer around too! I have to say I am impressed with Noah's ability to take a couple steps pushing the walker, but we have to stay very close because he likes to forget to hold on or just topples to the right and almost falls! They have these little walking assistants at Babies R Us and I'm thinking of purchasing one of them out of mercy for Mike's back. But then again, this might help his odds. Hmmmmm.... decisions, decisions!
Hello!
I decided to start a new blog about the adventures of being a preemie parent. I started a blog when I found out I was pregnant to document our journey into parenthood and when I got gravely ill in October 2009 at 24 weeks pregnant and fell into a coma, the idea of continuing that blog made me sad. No longer was I a "normal" mom. I had joined an exclusive club, one of which I didn't necessarily want to be a member of, that of parent to a premature child. Here is the link to my post about that whole ordeal Swine Flu.
I have used Facebook as a way to kind of track milestones and events and I feel like Noah deserves much more than that. I want him to be able to look back at a bigger picture of what his life was like in the early days. With that, I am posting the events/milestones that I posted on Facebook up until now...
1/12/10: Noah is in an open crib now!! No more isolette for him!! So proud of my little boy!! (NICU)
2/6/10: Guess who reached the 5lb mark today?!?! Mr. Noah Matthew Pacheco that's who!! -Signed Proud Momma Bear
2/8/10: Noah is on low flow nasal cannula and drank his first full bottle yesterday! Hopefully he continues doing wonderfully and can come home.
2/9/10: Good news- Noah is off his oxygen all together and doing wonderfully. Bad news- My Nana had what appears to be a brain aneurism and is being life-flighted to a hospital in Phoenix as we speak. Everyone please pray for my grandma. Heading there tonight.
2/11/10: Noah is a superstar! Dr D Found His Niche
2/14/10: Trying to research vaccinations and the link to Autism, I'm so scared! Anyone have opinions they'd like to share? We have to let Noah's doctor know soon...
Proud new owner of a 2010 Honda Pilot!!! Who cares if we used Noah as an excuse for needing more room! LOL!
I have used Facebook as a way to kind of track milestones and events and I feel like Noah deserves much more than that. I want him to be able to look back at a bigger picture of what his life was like in the early days. With that, I am posting the events/milestones that I posted on Facebook up until now...
1/12/10: Noah is in an open crib now!! No more isolette for him!! So proud of my little boy!! (NICU)
2/6/10: Guess who reached the 5lb mark today?!?! Mr. Noah Matthew Pacheco that's who!! -Signed Proud Momma Bear
2/8/10: Noah is on low flow nasal cannula and drank his first full bottle yesterday! Hopefully he continues doing wonderfully and can come home.
2/9/10: Good news- Noah is off his oxygen all together and doing wonderfully. Bad news- My Nana had what appears to be a brain aneurism and is being life-flighted to a hospital in Phoenix as we speak. Everyone please pray for my grandma. Heading there tonight.
2/11/10: Noah is a superstar! Dr D Found His Niche
2/14/10: Trying to research vaccinations and the link to Autism, I'm so scared! Anyone have opinions they'd like to share? We have to let Noah's doctor know soon...
Proud new owner of a 2010 Honda Pilot!!! Who cares if we used Noah as an excuse for needing more room! LOL!
2/16/10: Ughhh, Noah's surgery scheduled for the 25th (inguinal hernia). Everyone keep him in your prayers. Can the little guy catch a break?
2/25/10: God blessed us with a great surgeon, anesthisiologist, and nurse at Children's. Noah's surgery went great and he's recovering well. Thank the Lord and thank you all for all your thoughts and prayers. Amen!
2/27/10: Hoping and Praying that Noah Matthew gets to come home tomorrow!!!!
3/2/10: Another night without our little mister. Ay, will this guy gain some weight so we can bring his little booty home already?!?!?!
3/6/10: Sunday funday! Our little peanut is coming home!!!!
3/13/10: Finally home from an overnight trip to Children's. So far all tests are negative for infections but one of his surgery sites is irratated and after an x-ray and a suppository, our peanut is a little "lighter". IV fluids having him acting like a new man! ;)
3/17/10: Going down to SD...Noah has an Optometry and Peds appt. Hopefully little peanut gained some weight! ;)
3/18/10: Has decided that it's time to take pro pics of Noah as a "newborn" even though he's technically 3 months old!
3/24/10: Our little porkie pig is fast approaching the 7lb mark. He is 6lb 14oz today! Doc says he looks great!
3/29/10: Noah starting cooing yesterday! Momma's big boy!
4/1/10: CNN is probably going to do a story about Noah!!! WTH, this kid is having multiple 15 minutes of fame! I guess we're all blessed to be witnesses of God's miracle work. I love you Noah Matthew and I thank the good Lord above everyday that you're here with Daddy and me.
4/5/10: Our NICU Experience here
Still can't believe CNN will be in our living room on Thursday! Ahhh!!! Thanks again Miracle Babies, it's all for you. I hope this gets the word out about this wonderful organization.
4/8/10: Hey guys! CNN left a bit ago, went well and they're going to get back with us about the air date... stay tuned!
4/9/10: Forgot to tell everyone that Noah was 7lb 9oz on Wednesday!!!!
4/12/10: Yay, Noah is taking his 'newborn' pictures today, even though he's technically 4 months!! Like Joy Behar says, "So what, who cares"!!!
4/21/10: Alright folks, looks like Noah will be on CNN tomorrow during Larry King Live so long as there isn't any "breaking news"!
4/22/10: And oh yeah, with all this CNN excitement, I forgot to tell everyone about Mr Porky Pig's weight today! Drumroll please:::::: 8lbs 7oz!!!! (Gained almost a full pound in 2 weeks) Yup, my Dad says we're gonna have a 10lb Christmas turkey here in no time! I love you Noah Matthew!
Well, it was a little disappointing because I don't recall them even mentioning the name of the organization, Miracle Babies. 59 minutes about a dumb cartoon show and 30 seconds about a wonderful man and his efforts to make our world a better place, I guess that's what this world is about. But I do hope that it helped in some way and the word gets out about MB. The interview on the website is a little bit more in-depth. You can check it out below. Thank you again Dr. Daneshmand and Miracle Babies! Dr's Love, Money Help Families
4/24/10: Is thinking tonight that I am so lucky to have two great loves of my life right next to me. I love you baby, and I love you Noah! I live and breath for you two.
4/27/10: On the way down to SD. Day of needles for the Pacheco's. Blood check for me and round 3 of Synagis for Noah. No!!!!
4/28/10: Thinks Noah's fascination with fans is too funny! He can be screaming his head off, see those fan blades start going and get so excited!
5/5/10: Just heard that we're going to be doing a segment on KUSI tomorrow, I will have more details about air date/time soon! p.s. Someone have a name of a good agent? J/K!!! Yay for Miracle Babies, please remember to donate on spare change you might have on their facebook or website!!!
Ok, so maybe TMI but exactly 1 year ago today we conceived our little miracle Noah after one too many peach & raspberry margaritas @ the Bank here in Old Town Temecula! Must have been the switch from the first kind (Patron) to Casadores! LOL! Who would'a thought that one of the greatest things that has ever happened to me could result from some liquor & fruit? I love you Mike Pacheco and Noah!!
5/7/10: Set your DVR's for Sunday (Mother's Day) @ 10am on KUSI 9/51!!! They did such a good job and we're excited that the word about Miracle Babies is getting out. Please pass along to your friends/family and donate so MB can keep helping families here in SD and all over the country!
5/9/10: Ok, here's the prequel to the interview on San Diego People... www.kusi.com'>CNN Hero
For booking inquiries please contact Mommy @ 1-800-ILUV-NOAH
5/10/10: Noah just started reaching out to touch his toys on his play mat!!!!!! OMG...doing the happy mommy dance!!!
5/13/10: Busy day today... Noah's shot(s), tinting the car windows and thenSusanne Chavarria Pedro's Pampered Chef party. Looking forward to the last two, hoping he's ok from the picos!
5/14/10: Dying to see what Noah's birth announcements are going to look like!! So what if he's almost 6 months old!
5/16/10: About to go watch Ironman 2 and leaving Noah for the first time.. Even though I know his Nana will take great care of him, something just tells me I won't remember what this movie is about afterward. Between the worry and texting every 5 minutes...
5/19/10: Teething = Mommy Hell
5/21/10: Looking forward to getting Noah's birth announcements out today and tomorrow!!
5/22/10: Excited for the Centennial Portuguese Festa tomorrow. We have to expose Noah to the cultural learnings and traditions of the Portuguese side of his Mexi-Port"ism"!!
Noah started laughing today!!!!!!!!! Woo-hoo!!!!!!!
5/31/10: Noah in the Bumbo for the 1st time!!!
6/5/10: Noah in the big boy stroller!
6/6/10: 1 year ago today, we found out we were preggo with our peanut. And to my family, all I have to say is, "How did this happen?!?!" (inside joke about my shock and stupidity that day) LOL!!!! I love you Noah Matthew Pacheco, you were the best surprise of my life!
6/8/10: Great news! Just got back from Noah's physical therapy eval and he is doing great for his corrected age (3.5 months)!! His neck is real strong and he's on his way to start rolling over real soon!!! Yippee!! And a very happy belated 1/2 year mark to Noah (yesterday)!
6/11/10: I need a vacation from my vacation!! No more relaxers in store for the Pacheco's! Just go-go-go with NoNo!!! LOL!
6/12/10: What a day to spend our 5-Year Wedding Anniversary... Noah woke up @ 3 am with a lot of congestion and general yuckiness so off to Children's Urgent Care we go, ah the joys of parenthood! Happy Anniversary Mike Pacheco, I love you so much!
6/13/10: Noah's trip to Children's. The mister is ok now. Getting another albuterol treatment, xray looked good, update soon
6/18/10: OK, it's official: Noah has cut his bottom right front tooth! There are ridges and all! Oh, and just in case you didn't know, when a baby bites down with a solo little tooth, sometimes if feels like a little razor on your pinky! LOL!
6/21/10: It was Mother's Day too in our house yesterday. Noah rolled over from tummy to back on the bed!!! Woo-hoo!!! I'm one proud preemie momma!
6/25/10: One of the many sacrifices I'll make in my lifetime as a mother: Noah got into a pulmonology appt that we've been waiting for (earliest would have been end of August) and it of course lands on the day that Eclipse comes to theaters! So instead of watching my Edward on the big screen we'll be at Rady Children's Hospital-San Diego having our honey bunny's lungs looked at. Grateful nonetheless.
I've created a band for Noah... Noah's Band
6/30/10: Eclipse was great, but I can't tell you how much better Breaking Dawn is going to be. I've officially been awake for 36 hours straight now. Focus is on wishing my Dad Ojeda Charlie a happy birthday and not worrying about the not so great stuff we learned at Noah's pulmonary appointment today. Putting everything in God's hands...
7/6/10: Noah's swallow test is this Thursday, we finally got in. Please say your prayers and hope that NoNo is not aspirating when he swallows. We need those lungs as healthy as possible.
7/9/10: Update: Noah's swallow test went wonderful. He's not aspirating! He even got to try some bananas and he did well with those too! Looks like he's going to be having solids by the end of the month! Go Noah!!
7/16/10: Just in case you don't check your email, we have to cancel our party this weekend because me and Noah are feeling under the weather and don't want to get anyone sick. Plus, the 100+ degree weather up here won't make for the best of conditions! Sorry for punking out but our little monkey is 1st priority. Love you all!
8/1/10: Noah has the hives for a second day in a row. WTH?! Hoping it gets better in the next couple day or back to the ped we go...
8/19/10: Uuuuughghghhghgh! Just found out Noah has a high milk allergy! Maybe that's what's been wrong this whole time and not aspiration, reflux, gastro issues! Going to get some EleCare right now! Damn you Neosure!
8/22/10: Noah's having watermelon in his mesh snack bag right now. And so far he's had peaches and sweet potatoes today. Learning to eat like a big boy! Oh and did we forget to mention that he's learned how to avoid tummy time completely now?! Yup, little dude is rolling over in both directions in 2 seconds flat!
8/29/10: Going on our first "official" grocery shopping trip for Noah, it's time to start making some yummy foods for him to enjoy! Trader Joe's and Henry's here we come!
8/29/10: Little Dude is being funny today so we decided to capture it on film! Noah Laughs @ Mommy
8/30/10: Taking Noah to see his great great grandma in AZ this weekend. Better bring our papers! LOL
9/2/10: Noah is getting his 4 top teeth! Aaaaaahhhhhh! Jesus take the wheel!
9/3/10: Noah just pulled me in for a besito for the 1st time ever!!! Awww, true love!
9/15/10: Today is Wednesday September 15th: Noah had his first Gerber Puffs today with success (only gagged once!) and now weighs 14lbs 12.5oz! Could we reach 15lbs by this weekend?!?! Let's hope and pray! I love you Mr. NoNo!
9/16/10: Mommy and Noah being silly again! La La La La
9/23/10: OMG, Noah is seriously watching Superman with Mike Pacheco right now and talking to the TV and all! Smallville is right around the corner and then it's more weenie power around here. So this is what it felt like to be outnumbered Dad/ Ojeda Charlie?!
9/24/10: Noah has officially started talking to himself. It's too funny!
10/2/10: Noah had some beef stew for dinner and now he's enjoying desert, a teething biscuit!
10/6/10: Oi vay! Long day! Pulmonologist says that Noah's lung and breath sounds are great! Don't need to see him for another 3 months! Woo-hoo! He now weighs 15lbs 8oz and is 2' 2" tall. Go Noah, mommy and daddy love you!
10/8/10: Noah got his flu/swine flu combo vaccine today. Let's hope and pray he doesn't get sick.
LOL, just broke out the Glow Worm and Noah love's it! Next throwback to debut: a Monchichi!
10/18/10: Bought Noah's costume online, so excited for his first Halloween!
10/23/10: One year ago today... Life Anniversary
10/26/10: Noah has started to rock back and forth on his hands and knees, so what if it's only for a few seconds and us putting him in that position! A precursor to crawling!! Go Noah Matthew!
10/31/10: Can't wait to dress Noah up in his Tootsie Roll costume!
11/5/10: Noah started using his finger to make blubbering sounds! It's too funny!
11/13/10: Taking Noah out in the crisp morning of November tomorrow for theMiracle Babies 5K walk/run. I'm so scared he's going to get sick, he's gonna be one little bundled up portumex burrito!
11/15/10: Noah's invites are going out in the next couple of days! I hope everyone understands that this party is just IMMEDIATE family only because we have to keep it small for the sake of Noah's lungs in the middle of cold and flu season. Next year EVERYONE can come! My apologies in advance.
11/25/10: Feeling extra blessed this year because I'm not in a coma like I was this time last year. Instead I'm stuffed, blessed with memories made by family and friends, in love with my best friend and mommy to a crazy little boy named Noah. Thank you Lord! ♥
11/27/10: The Christmas tree is up! Had a blast with the whole family!
12/7/10: Thank you guys for your emails, texts and posts! My Little NoNo-meister is 1 today and I'm so happy we could celebrate that. I thank the good Lord above for giving me all my birthday wishes wrapped up in this heaven sent little boy!
12/12/10: Realizes how blessed we are to have amazing family and friends who are there for us and our son. Thank you to everyone who made it out today to help us celebrate our miracle's 1st birthday. Much love!
Noah's 1st B-Day Slideshow... Noah
12/14/10: About to start opening Noah's B-Day presents, finally! LOL!
12/24/10: HE BABBLED DA-DA AND MOM YESTERDAY AND TODAY IN THAT ORDER!!!! So what if it might have been happen chance we still heard it, yup that’s right, we were there together both times and we both heard it!!! So proud of our little guy! Don’t want to get too excited and jinx it so I’ll shut up now.
12/28/10: BREAKING NEWS: Noah Matthew Pacheco, 10 months adjusted/ 1year actual, has started CRAWLING!!! Took off for about 7 paces after his Zsu Zsu Pet started going away from him!!! Never thought I'd see the day!! Love you baby boy!
1/10/11: ♥ 's hearing Noah babble non-stop "ma ma ma ma". When I go to him he's totally happy and content playing or crawling but thinking of his mama (that's my story and I'm stickin' to it)!!!
1/12/11: Noah has suffered his first "boy" injury and there was blood!!! Ok, it was only a couple dots but still! Guess I still have that PPP (Preemie Parent Paranoia), LOL!
1/18/11: Anyone know how to tame a cowlick? I'm getting ready to break out some Tres Flores on this little boy! LMAO!
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