I know I'm asking for trouble by wanting him to walk, I mean little dude gets in enough trouble on all fours as it is, but it would just be one step closer (pardon the pun) to a little more normalcy around here. Afterall, that's all us preemie parents want for our munchkins...
Tuesday, April 12, 2011
Wednesday, April 6, 2011
Take Some Baby Steps, Baby Steps, Little Tiny Baby Steps...
In the spirit of one of Noah's favorite episodes of Yo Gabba Gabba (see video below of a baby with the same hankering for these obnoxious monsters who enter my dreams every night), Noah is in the beginning stages of leaving infancy and entering toddlerdom. *sniff sniff*
This morning at 11:22am Noah took 3 unaided steps in the Family Room leaving Mike's arms and walking towards the couch where Diego and Sara sat. I was in the kitchen making bacon and eggs and I thankfully turned around to see him in the nick of time!
It's just like this kid, to make me look like a butt head, since I just posted yesterday that there hadn't been any major events with regard to his milestones. Guess, this is just the first of many times I will eat my words with this little guy! Go Noah Matthew, mommy is so proud of you!
This morning at 11:22am Noah took 3 unaided steps in the Family Room leaving Mike's arms and walking towards the couch where Diego and Sara sat. I was in the kitchen making bacon and eggs and I thankfully turned around to see him in the nick of time!
It's just like this kid, to make me look like a butt head, since I just posted yesterday that there hadn't been any major events with regard to his milestones. Guess, this is just the first of many times I will eat my words with this little guy! Go Noah Matthew, mommy is so proud of you!
Tuesday, April 5, 2011
Bad Mother Alert
It's been almost a month since my last entry, yikes! Given what we had to endure between the horrible stomach virus that wreaked havoc on Noah's GI Tract and caused a 5% body weight loss AND the subsequent cold he caught from the two visits to the ER during the aforementioned, WE WERE BEAT!
The good news, Noah gained that almost 1.5lbs back and he is getting over the last bit of the longest cold that he's had to date. On another note, it's a double-edge sword of relief and panic because Noah's Synagis shots are over until October (so long as we get approved for this last round). So he's more susceptible to RSV and similar viruses but we'll manage with our constant helicoptering over everything Noah puts into his mouth which is pretty much everything these days (oh, yeah, I forgot to mention he's also teething something awful right now as well) and the handy bottle of hand sanitizer we always carry. If I could somehow manage to get my hands on that hardcore stuff we just ran out of from the hospital, I need to contact one of the girls from Sharp... but I digress...
Not too much has happened since my last post. His therapies obviously got put on hold because of how sick he was so he hasn't seen anyone in about a month. We also found out that he will be seeing a new OT now because his old one has left the agency who handles Noah's case. I'm a little sad obviously because she is so familiar with Noah but I'm a kinda relieved at the same time because I was a little concerned with his progress and her techniques (or lack thereof). She indicated to me that she left the agency all together but I have my suspicions and truly hope she just didn't give up on our NoNo and all his difficulties with eating/vomiting/reflux/etc... In any case, we're still gonna fight the good fight in hopes that we can wean him from his 6-7 bottles of Pediasure a day and get him to start eating more than a couple nibbles before losing interest. Keep praying for us!
Something we're very excited about is attending the Miracle Babies 2nd Annual Casino Night on 5/14/11 at the Ronald McDonald House. It feels so good to give back, in a small way to an organization who does so much for families in need. We were so blessed that Dr. Daneshmand was the doctor on call that day when they decided to do the emergency c-section, he's an angel on Earth. We've also scheduled a family mini-vacation with my parents, sisters an aunt and cousin to Palm Springs in... July! I know, we're crazy right?! It should be fun and hot enough to spend all day by the pool, drinking a number of concoctions.
As far as milestones are concerned we haven't had any biggies around here lately. Noah is seeming more and more interested in trying to stand alone for a second but as soon as he realizes that he's doing so he freaks out! He's also playing with Isaiah a lot more. He's still not that interested in eating but we try all day long. I'm hoping that this horrible bout of teething he's going through explains why he's extra sensitive to things put in front of him because he was doing pretty good there for a while.
As far as doctor appointments, we had a good visit with Pulmonary last week and they don't need to see him for 6 months! We were going every 2 months! Woo-hoo! He has a delayed gastric emptying study scheduled for May to see if his stomach contents are taking longer than normal to digest and empty to his intestines, which might explain his lack of hunger and vomiting. It's very non-invasive, all he has to do is drink liquid with Barium in it. We also scheduled a speech evaluation for the end of April to see where he's at in terms of his language. I, personally think it's a little early considering the fact that he'll only be 14 months adjusted in a couple days. But, I like to think that early intervention and therapy can't hurt anyone so we'll just have to see what they say. He's only really saying "baby" or "bebe" with consistency and mostly babbles randomly.
Let's see, what else? Lots of things going on with the selling of property and a new home purchase in the future as well as some of the not-so-fun stuff involving litigation that I can't say too much about right now. I'm also trying to get approved for SS Disability because of my paralysis and they're making me jump through hoops, understandably so, being that I'm only 27 and requesting it for something that I shouldn't have ever had to deal with in the first place. I applied back in November 2010 and still don't have an answer. I went to a Psych appointment yesterday and have an Internist appointment next week so hopefully I will know something soon. There is nothing more that I want than to be able to get up in the morning pain-free and walk without my foot dragging behind me. I had dreams, I've worked since I was 14 years old, I went college, I wanted a career and even more, being able to go to Q-School and get my LPGA/PGA credentials to teach and give lessons (which is what I was planning to do and arranging our move to FL when I found out I was pregnant). What I wouldn't give to be able to play, jump and run after my son one day. It just isn't going to happen. Ok, pity party over!
The good news, Noah gained that almost 1.5lbs back and he is getting over the last bit of the longest cold that he's had to date. On another note, it's a double-edge sword of relief and panic because Noah's Synagis shots are over until October (so long as we get approved for this last round). So he's more susceptible to RSV and similar viruses but we'll manage with our constant helicoptering over everything Noah puts into his mouth which is pretty much everything these days (oh, yeah, I forgot to mention he's also teething something awful right now as well) and the handy bottle of hand sanitizer we always carry. If I could somehow manage to get my hands on that hardcore stuff we just ran out of from the hospital, I need to contact one of the girls from Sharp... but I digress...
Not too much has happened since my last post. His therapies obviously got put on hold because of how sick he was so he hasn't seen anyone in about a month. We also found out that he will be seeing a new OT now because his old one has left the agency who handles Noah's case. I'm a little sad obviously because she is so familiar with Noah but I'm a kinda relieved at the same time because I was a little concerned with his progress and her techniques (or lack thereof). She indicated to me that she left the agency all together but I have my suspicions and truly hope she just didn't give up on our NoNo and all his difficulties with eating/vomiting/reflux/etc... In any case, we're still gonna fight the good fight in hopes that we can wean him from his 6-7 bottles of Pediasure a day and get him to start eating more than a couple nibbles before losing interest. Keep praying for us!
Something we're very excited about is attending the Miracle Babies 2nd Annual Casino Night on 5/14/11 at the Ronald McDonald House. It feels so good to give back, in a small way to an organization who does so much for families in need. We were so blessed that Dr. Daneshmand was the doctor on call that day when they decided to do the emergency c-section, he's an angel on Earth. We've also scheduled a family mini-vacation with my parents, sisters an aunt and cousin to Palm Springs in... July! I know, we're crazy right?! It should be fun and hot enough to spend all day by the pool, drinking a number of concoctions.
As far as milestones are concerned we haven't had any biggies around here lately. Noah is seeming more and more interested in trying to stand alone for a second but as soon as he realizes that he's doing so he freaks out! He's also playing with Isaiah a lot more. He's still not that interested in eating but we try all day long. I'm hoping that this horrible bout of teething he's going through explains why he's extra sensitive to things put in front of him because he was doing pretty good there for a while.
As far as doctor appointments, we had a good visit with Pulmonary last week and they don't need to see him for 6 months! We were going every 2 months! Woo-hoo! He has a delayed gastric emptying study scheduled for May to see if his stomach contents are taking longer than normal to digest and empty to his intestines, which might explain his lack of hunger and vomiting. It's very non-invasive, all he has to do is drink liquid with Barium in it. We also scheduled a speech evaluation for the end of April to see where he's at in terms of his language. I, personally think it's a little early considering the fact that he'll only be 14 months adjusted in a couple days. But, I like to think that early intervention and therapy can't hurt anyone so we'll just have to see what they say. He's only really saying "baby" or "bebe" with consistency and mostly babbles randomly.
Let's see, what else? Lots of things going on with the selling of property and a new home purchase in the future as well as some of the not-so-fun stuff involving litigation that I can't say too much about right now. I'm also trying to get approved for SS Disability because of my paralysis and they're making me jump through hoops, understandably so, being that I'm only 27 and requesting it for something that I shouldn't have ever had to deal with in the first place. I applied back in November 2010 and still don't have an answer. I went to a Psych appointment yesterday and have an Internist appointment next week so hopefully I will know something soon. There is nothing more that I want than to be able to get up in the morning pain-free and walk without my foot dragging behind me. I had dreams, I've worked since I was 14 years old, I went college, I wanted a career and even more, being able to go to Q-School and get my LPGA/PGA credentials to teach and give lessons (which is what I was planning to do and arranging our move to FL when I found out I was pregnant). What I wouldn't give to be able to play, jump and run after my son one day. It just isn't going to happen. Ok, pity party over!
Thursday, March 10, 2011
Screw you throw-up!
We had to take Noah to the ER yesterday because he was vomiting every feed. We think he may have caught what Mike and almost every other member of this family had the last couple weeks, a flu bug or virus that wreaks havoc for a couple days and then goes away. Nonetheless, we can probably say good bye to the short-lived world of 20 lbs because he has not been eating well, understandably, and throwing up a lot. Damn, I can't wait until we can move and I don't have to worry about all the germs.
Monday, March 7, 2011
1-Year Anniversary
A year ago today, on a rather cold and rainy afternoon, we brought our little peanut home after a very long and agonizing 3-month stay in the NICU at Sharp Mary Birch. Thank you to all the doctors, nurses and specialist that made that day possible. And a huge thank you to my husband Mike and my wonderful family for all the support you gave me, I don't think I would have made it out of there with my sanity intact without you. And most importantly, I would like to give all glory to God. Without his grace Noah and I wouldn't be here today to share our miraculous story with whoever is willing to hear it. I made a promise to him upon waking up from my coma to share my love and gratitude for Him every chance I got and I am thankful that this blog is helping me do that today. Amen!
Sunday, March 6, 2011
Off to the Races!
Momma always warned me about those fast boys... should I be scared about how much trouble he's going to get in with his big cousin when he's off that push-toy?!
Friday, March 4, 2011
Entering the world of deuces!
So the last time Noah had a 2 at the start of his weight measurement was back in January of 2010 while he sat in an isolette in the NICU of Sharp Mary Birch Hospital. I still can't believe the set of circumstances that brought us to the point where I had given birth to a 2lb 8.4oz baby boy. I still don't think the magnitude of everything registered to me in my just-came-out-of-a-coma haze when they told me that Noah was okay, that I was okay. I do, however, remember how I felt the first time I held all 2 pounds of him in my arms that had to be propped up by numerous pillows because of my atrophied body and subsequent weakness. Hearing his tiny little cry, seeing his tiny little hands and feet, looking into those big eyes and knowing what complete and perfect love was. And today when the scale read out something with a 2 in front, I was reminded of that love and how Noah continually shows me what a strong and determined soul he is. This journey, this path, that we walk on everyday can be so challenging. But it's moments like this that make it all worth it. I am so proud of my little boy. He inspires me and reminds me of how blessed we are, everyday, and that is a gift that cannot be quantified. I thank God everyday and pray for the ability, patience and promise to be the best mother I can be, now and always. I love you Noah Matthew.
Subscribe to:
Posts (Atom)