Friday, July 15, 2011
Noah's 1st Driving Lesson
Ok, before I start getting reported to CPS, this was in a gated parking lot, in the middle of the day when no one was around and we went approximately 300 feet. /Disclaimer.
Monday, July 11, 2011
Hi!
Noah's new favorite word, "Hi!". Said to: mommy and daddy all day long, his doggies, random strangers (especially people walking on the street below our balcony, that poor captive audience thing, LOL), his toys, my cell phone, and the air... to name a few!
Wednesday, July 6, 2011
A Numbers Game
Today Noah:
Weighs 22lbs 11.5oz (almost 25th percentile adjusted)
Stands 2' 7.5" tall (almost 50th percentile adjusted)
Has a noggin that is 18.7" around (almost 50th percentile adjusted)
His weight for length (something that is really looked at by the docs and pretty important) is in the 30th percentile.
So we're pretty happy with these numbers, I'm not going to lie, we'd love to see him in at least the 50th percentile for every category. But, given his many gastro issues, we will gladly take it!
We had his follow-up appointment with his new GI (Dr Taylor suddenly vanished from Children's and we were never given an explanation or reason why) and she gave us the results of the DGE Scan they performed a couple weekends ago. It came back NORMAL! Double-edged sword of course because that means that we still don't know why Noah is puking all the time or why he can't transition to solids and away from his bottle and Pediasure all day long. I'm not too fond of this new doc so we're going to try and switch to someone else. She wasn't super helpful or knowledgeable about Noah's history (which I think she should have been given this was his first visit with her and she could have looked at his chart more closely as to be prepared to answer any questions or concerns). It seemed like we were just another number and she needed to get out of there as quickly as possible. Her only suggestion was to increase his Prevacid dose (we weaned him off a couple months ago but recently started him up on a very low dose) because he was refluxing during the stomach scan. When I asked about things like digestive enzymes to help get his gut going and hopefully aid in his digestion thus preventing the larger volume throw ups, she looked at me like I was crazy and said that they wouldn't help him. Ugh, ok, well nothing has until this point so shouldn't we at least try? They're natural and don't have any negative or long-term side effects, as a matter of fact they don't have any at all! I guess I'm just crazy! So, the long-term plan is to keep continuing with his feeding therapy (see below for more specifics) and see how he does in a couple months. They want us to do a urinalysis and see how his kidneys are functioning and then eventually do an MRI to rule out anything neurological. Yay, more tests I have to subject my poor son to. The MRI is last resort or if he gets worse, I am not sedating my son and exposing him to more radioactivity than he already has been in his short little life. I only want him to dress up and think he's Spiderman not actually turn into him. So pretty much a waste of almost 2 hours of our lives today with no help or answers. Surprise!
We also had the first part of his speech evaluation this afternoon. 2 good things came of this, the first is that the therapist is going to talk to Sunny Days and request an OT that specializes in feeding (something I have done in the past but with no luck so far), and second is that he will more than likely qualify for speech therapy even though she was pretty pleased with his vocalization and words. I am happy about this because this is just another way for him to get therapy for his oral sensory issues. Hooray!
And finally, we started seeing Dr. Peter, a chiropractor that comes highly recommended from family and we're hoping that this is just another step in the right direction as we seek for answers 'outside the box'. Noah cries for a few minutes as the adjustments are made and then he is fine. Mike started getting treated and after watching Daddy go first and not cry (Mike's good at hiding it and wipes his tears away pretty fast, LOL) he is getting more comfortable.
I think that's it, once again, I have to say how proud I am of our little guy. He's come a long way!
Weighs 22lbs 11.5oz (almost 25th percentile adjusted)
Stands 2' 7.5" tall (almost 50th percentile adjusted)
Has a noggin that is 18.7" around (almost 50th percentile adjusted)
His weight for length (something that is really looked at by the docs and pretty important) is in the 30th percentile.
So we're pretty happy with these numbers, I'm not going to lie, we'd love to see him in at least the 50th percentile for every category. But, given his many gastro issues, we will gladly take it!
We had his follow-up appointment with his new GI (Dr Taylor suddenly vanished from Children's and we were never given an explanation or reason why) and she gave us the results of the DGE Scan they performed a couple weekends ago. It came back NORMAL! Double-edged sword of course because that means that we still don't know why Noah is puking all the time or why he can't transition to solids and away from his bottle and Pediasure all day long. I'm not too fond of this new doc so we're going to try and switch to someone else. She wasn't super helpful or knowledgeable about Noah's history (which I think she should have been given this was his first visit with her and she could have looked at his chart more closely as to be prepared to answer any questions or concerns). It seemed like we were just another number and she needed to get out of there as quickly as possible. Her only suggestion was to increase his Prevacid dose (we weaned him off a couple months ago but recently started him up on a very low dose) because he was refluxing during the stomach scan. When I asked about things like digestive enzymes to help get his gut going and hopefully aid in his digestion thus preventing the larger volume throw ups, she looked at me like I was crazy and said that they wouldn't help him. Ugh, ok, well nothing has until this point so shouldn't we at least try? They're natural and don't have any negative or long-term side effects, as a matter of fact they don't have any at all! I guess I'm just crazy! So, the long-term plan is to keep continuing with his feeding therapy (see below for more specifics) and see how he does in a couple months. They want us to do a urinalysis and see how his kidneys are functioning and then eventually do an MRI to rule out anything neurological. Yay, more tests I have to subject my poor son to. The MRI is last resort or if he gets worse, I am not sedating my son and exposing him to more radioactivity than he already has been in his short little life. I only want him to dress up and think he's Spiderman not actually turn into him. So pretty much a waste of almost 2 hours of our lives today with no help or answers. Surprise!
We also had the first part of his speech evaluation this afternoon. 2 good things came of this, the first is that the therapist is going to talk to Sunny Days and request an OT that specializes in feeding (something I have done in the past but with no luck so far), and second is that he will more than likely qualify for speech therapy even though she was pretty pleased with his vocalization and words. I am happy about this because this is just another way for him to get therapy for his oral sensory issues. Hooray!
And finally, we started seeing Dr. Peter, a chiropractor that comes highly recommended from family and we're hoping that this is just another step in the right direction as we seek for answers 'outside the box'. Noah cries for a few minutes as the adjustments are made and then he is fine. Mike started getting treated and after watching Daddy go first and not cry (Mike's good at hiding it and wipes his tears away pretty fast, LOL) he is getting more comfortable.
I think that's it, once again, I have to say how proud I am of our little guy. He's come a long way!
Friday, July 1, 2011
Practicing for the Tooth Fairy
What better way to follow up after our most recent post about ice cream! Good job Noah, the Tooth Fairy is watching and she approves! ;)
Subscribe to:
Posts (Atom)