It's been almost a month since my last entry, yikes! Given what we had to endure between the horrible stomach virus that wreaked havoc on Noah's GI Tract and caused a 5% body weight loss AND the subsequent cold he caught from the two visits to the ER during the aforementioned, WE WERE BEAT!
The good news, Noah gained that almost 1.5lbs back and he is getting over the last bit of the longest cold that he's had to date. On another note, it's a double-edge sword of relief and panic because Noah's Synagis shots are over until October (so long as we get approved for this last round). So he's more susceptible to RSV and similar viruses but we'll manage with our constant helicoptering over everything Noah puts into his mouth which is pretty much everything these days (oh, yeah, I forgot to mention he's also teething something awful right now as well) and the handy bottle of hand sanitizer we always carry. If I could somehow manage to get my hands on that hardcore stuff we just ran out of from the hospital, I need to contact one of the girls from Sharp... but I digress...
Not too much has happened since my last post. His therapies obviously got put on hold because of how sick he was so he hasn't seen anyone in about a month. We also found out that he will be seeing a new OT now because his old one has left the agency who handles Noah's case. I'm a little sad obviously because she is so familiar with Noah but I'm a kinda relieved at the same time because I was a little concerned with his progress and her techniques (or lack thereof). She indicated to me that she left the agency all together but I have my suspicions and truly hope she just didn't give up on our NoNo and all his difficulties with eating/vomiting/reflux/etc... In any case, we're still gonna fight the good fight in hopes that we can wean him from his 6-7 bottles of Pediasure a day and get him to start eating more than a couple nibbles before losing interest. Keep praying for us!
Something we're very excited about is attending the Miracle Babies 2nd Annual Casino Night on 5/14/11 at the Ronald McDonald House. It feels so good to give back, in a small way to an organization who does so much for families in need. We were so blessed that Dr. Daneshmand was the doctor on call that day when they decided to do the emergency c-section, he's an angel on Earth. We've also scheduled a family mini-vacation with my parents, sisters an aunt and cousin to Palm Springs in... July! I know, we're crazy right?! It should be fun and hot enough to spend all day by the pool, drinking a number of concoctions.
As far as milestones are concerned we haven't had any biggies around here lately. Noah is seeming more and more interested in trying to stand alone for a second but as soon as he realizes that he's doing so he freaks out! He's also playing with Isaiah a lot more. He's still not that interested in eating but we try all day long. I'm hoping that this horrible bout of teething he's going through explains why he's extra sensitive to things put in front of him because he was doing pretty good there for a while.
As far as doctor appointments, we had a good visit with Pulmonary last week and they don't need to see him for 6 months! We were going every 2 months! Woo-hoo! He has a delayed gastric emptying study scheduled for May to see if his stomach contents are taking longer than normal to digest and empty to his intestines, which might explain his lack of hunger and vomiting. It's very non-invasive, all he has to do is drink liquid with Barium in it. We also scheduled a speech evaluation for the end of April to see where he's at in terms of his language. I, personally think it's a little early considering the fact that he'll only be 14 months adjusted in a couple days. But, I like to think that early intervention and therapy can't hurt anyone so we'll just have to see what they say. He's only really saying "baby" or "bebe" with consistency and mostly babbles randomly.
Let's see, what else? Lots of things going on with the selling of property and a new home purchase in the future as well as some of the not-so-fun stuff involving litigation that I can't say too much about right now. I'm also trying to get approved for SS Disability because of my paralysis and they're making me jump through hoops, understandably so, being that I'm only 27 and requesting it for something that I shouldn't have ever had to deal with in the first place. I applied back in November 2010 and still don't have an answer. I went to a Psych appointment yesterday and have an Internist appointment next week so hopefully I will know something soon. There is nothing more that I want than to be able to get up in the morning pain-free and walk without my foot dragging behind me. I had dreams, I've worked since I was 14 years old, I went college, I wanted a career and even more, being able to go to Q-School and get my LPGA/PGA credentials to teach and give lessons (which is what I was planning to do and arranging our move to FL when I found out I was pregnant). What I wouldn't give to be able to play, jump and run after my son one day. It just isn't going to happen. Ok, pity party over!
